About EPIC-ND
Children and their families thrive when their parents/carers are supported. The EPIC-ND research project aims to better support families of children with neurodisability with everyday things in life. We want to help families to get help for these everyday things.
What are we doing?
The EPIC-ND research project is providing families with information about community resources that provide support for these everyday things. Many of these resources are free of charge.
This information is available via a hard-copy booklet or an online website. The hard-copy can easily redirect you to the online version. Both the hard-copy booklet and online version contain similar information.
Why have I been directed to this website?
You have been directed to this website to access the online version of the information about community resources that provide support for these everyday things. You can navigate through this website to find information about supports and services for everyday things, health & disability services, carer support, and legal & advocacy support.
Our project
EPIC-ND is a research project led by The University of Sydney. It is being conducted at the Rehabilitation Departments of the three NSW Children’s Hospitals (Sydney Children’s Hospital, Randwick; the Children’s Hospital at Westmead; John Hunter Children’s Hospital).
All research in Australia involving humans is reviewed by an independent group of people called a Human Research Ethics Committee (HREC). This study has been approved by the Sydney Children’s Hospitals Network (SCHN) HREC (2024/ETH02263).
Our partners
This research is being delivered in collaboration with our partners at UNSW, Cerebral Palsy Alliance, Sydney Children’s Hospitals Foundation, NSW Agency for Clinical Innovation, Luminesce Alliance, and Sydney Local Health District.
Our funders
This project is funded by the Medical Research Future Fund 2023 Clinical Researchers Applied Research in Health Scheme and Luminesce Alliance.
Luminesce Alliance – Innovation for Children’s Health. Luminesce Alliance is a not-for-profit cooperative joint venture between the Sydney Children’s Hospitals Network, the Children’s Medical Research Institute, the Children’s Cancer Institute, the University of Sydney, and the University of New South Wales Sydney. It has been established with the support of the NSW Government to coordinate and integrate paediatric research.
Contact Us
EPIC-ND Research Team
If you have any questions or want more information about this study, you can contact Dr Katarina Ostojic on katarina.ostojic@sydney.edu.au or epic-nd.research@sydney.edu.au.
Alternatively, you can contact us by filling the form below.
Sydney Children’s Hospitals Network Research Governance Office
We are doing this research at the Children’s Hospital at Westmead (approval number: 2025/STE01955) and Sydney Children’s Hospital (approval number: 2025/STE01956). If you have any concerns about the study, or don’t like how the study is being done, you can also talk to the SCHN Research Governance Office on (02) 9845 3011 or SCHN-Governance@health.nsw.gov.au. Please quote the approval numbers.
Hunter New England Local Health District Research Office
The conduct of this research has been authorised by the Hunter New England Local Health District to be conducted at the John Hunter Children’s Hospital site (approval number: 2024/STE04178). If you have concerns or complaints about any aspect of the project or the way it is being conducted, please contact the HNE Research Office, HNELHD Level 4 West, Hunter Medical Research Institute, Lot 1 Kookaburra Circuit, New Lambton. You can call (02) 4921 4140 or email NELHDResearchOffice@health.nsw.gov.au
Please quote the approval number.